tag:blogger.com,1999:blog-8031889641831063061.post8213009959602710031..comments2023-09-27T18:00:59.400+01:00Comments on It's a Shit Business: you ain't seen me, roight?stevedominohttp://www.blogger.com/profile/08598042606017502408noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8031889641831063061.post-70886640267731686002014-08-05T22:36:08.103+01:002014-08-05T22:36:08.103+01:00I told the researcher that the worst thing they co...I told the researcher that the worst thing they could do is reinforce everyone's perception that MS is a creeping, inevitable path to ramping disability, a wheelchair and death. My own path probably doesn't make good drama, but she was especially interested in the whole diagnostic process (which took 4 years for me) and when I said it was so much harder for the people around me than for me, because I knew what it felt like. I'm not a viewer, but it will be interesting to see how they approach it. She's doing her research anyway. She remarked how struck she was that everyone she spoke to had such different experiences. We'll see. I suspect I have you to thank for the MS Trust, btw.... but it's nice to be able to sound off about this stuff, eh?<br /><br />(I get the odd real life person stumbling across my blog, and it's always weird.... especially when it's someone from work)swisslethttps://www.blogger.com/profile/16708248700851998044noreply@blogger.comtag:blogger.com,1999:blog-8031889641831063061.post-12711033447829499162014-08-05T21:51:43.721+01:002014-08-05T21:51:43.721+01:00This comment is actually from the divine MS Cranky...This comment is actually from the divine <b>MS Cranky Pants</b>, which she was forced to send by a cunningly circuitous route because of excessive ads. It certainly looks as though Google is doing everything it can to turn people off using Blogger!<br /><br /><i>In case you delete this post, I'm responding quickly and without much thought (unlike my usual considered responses) (...considered what, exactly?) (now I'm just being weird - SORRY) <br /><br />Happy to hear the house sale is going well. But, sorry there have been Incidents. Finally, yay on being a celebrity of sorts. Don't abandon those of us who liked you even when you were NOT a celeb. That last bit, flip as it sounds, really was meant as an admiring remark. It's cool that you're an activist. Really.</i>stevedominohttps://www.blogger.com/profile/08598042606017502408noreply@blogger.comtag:blogger.com,1999:blog-8031889641831063061.post-21292119869599043912014-08-05T21:44:05.609+01:002014-08-05T21:44:05.609+01:00Hey there. There hasn't been a real-life/onlin...Hey there. There hasn't been a real-life/online collision, just a realisation that there <b>could </b>be. Derby is *makes minute gap between fingers* that big, so it seemed the safest course of action. <br /><br />You and I appear to be the go-to guys in our situation (MS, 40-ish, male) especially with the MS Trust! With regards to the drama, I hope I didn't put them off by saying how very undramatic my own diagnostic process was. I'm glad I'm not the only one who likes the sound of his own voice. <br /><br />Good work on the marathon (you mad sod) - you'll do brilliantly. stevedominohttps://www.blogger.com/profile/08598042606017502408noreply@blogger.comtag:blogger.com,1999:blog-8031889641831063061.post-81920803277163283252014-08-05T19:58:53.623+01:002014-08-05T19:58:53.623+01:00Sorry for your online/real life collision. I'...Sorry for your online/real life collision. I've largely managed to avoid that, but that's not ideal, is it?<br />I too have had the pleasure of talking to that nice lady from the national broadcaster.... and like you, I was expecting a quick chat and ended up speaking to her for AGES. She seems interested and they seem very keen to make sure they do a good job of it, which is excellent news for all concerned.<br />In other news, I've just been offered a place to run in next year's London marathon for a well known MS charity. Yikes. Look out for me, I'll be wearing blue.<br /><br />tswisslethttps://www.blogger.com/profile/16708248700851998044noreply@blogger.com