tag:blogger.com,1999:blog-8031889641831063061.post5628349844675857637..comments2023-09-27T18:00:59.400+01:00Comments on It's a Shit Business: don't want to be one of THOSE moaning MS bloggers but...stevedominohttp://www.blogger.com/profile/08598042606017502408noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-8031889641831063061.post-55167037976869985392013-06-19T12:20:15.380+01:002013-06-19T12:20:15.380+01:00thanks for the comments and birthday wishes - i wa...thanks for the comments and birthday wishes - i wasn't particularly DOWN on blogging per se, but i'm historically very conflicted about writing about my MS.<br /><br />on one hand, if a newly-diagnosed person stumbled (no pun intended) across my blog, i hope it would come across as positive and informative without being utterly SCARIFYING<br /><br />on the other, i worry that by writing this stuff down - even as infrequently as i do now - i'm allowing myself to dwell on stuff that will (or most likely will or maybe not) happen anyway.<br /><br />(if you follow my tortuous logic and sentence structure!)<br /><br />there are other things in my life apart from my illness... like the job i should be doing, obviously...stevedominohttps://www.blogger.com/profile/08598042606017502408noreply@blogger.comtag:blogger.com,1999:blog-8031889641831063061.post-83214791106709393292013-06-15T15:01:16.636+01:002013-06-15T15:01:16.636+01:00"probably some wild party or gallery opening...."probably some wild party or gallery opening... *ahem*"<br /><br />HAHA - must've been the same ones I attended recently. <br /><br />Brains are curious things; mine is a giant mess of anxiety, so even if I *know* a symptom is almost certainly related to the MS, I have the freakish, hypochondriac, knee-jerk, "oh, that's bound to be [fill in the blank]", because I know The Signs of just about every deadly disease out there. Very tiring, it is. Ms. CrankyPantshttps://www.blogger.com/profile/13639705108258882767noreply@blogger.comtag:blogger.com,1999:blog-8031889641831063061.post-64921337787937899812013-06-14T19:56:35.902+01:002013-06-14T19:56:35.902+01:00my bladder has always been the size of a pea, so e...my bladder has always been the size of a pea, so even if my MS is making the urge worse, I'm pretty much the boy who cried wolf....swisslethttps://www.blogger.com/profile/16708248700851998044noreply@blogger.comtag:blogger.com,1999:blog-8031889641831063061.post-86482748734383541842013-06-14T19:55:34.802+01:002013-06-14T19:55:34.802+01:00I hear ya. I do this all the time - both with phy...I hear ya. I do this all the time - both with physical symptoms and mental. I worry about my declining ability to run, but wear and tear on the knees is hardly unusual in a 39 year old man and may be very little to do with a dropped leg and my MS. I'm starting to find it harder to remember people's names sometimes, but again... just because I always had a really sharp memory, doesn't mean this just isn't the way of the world. I used to laugh at the way my dad fell asleep in front of the telly every night too, and now I kinda know where he was coming from. You just gotta take it as it comes, right?<br /><br />Happy birthday dude.<br /><br />I don't know about you, but all this healthy perspective on life isn't going to stop me moaning on my blog mind.....swisslethttps://www.blogger.com/profile/16708248700851998044noreply@blogger.comtag:blogger.com,1999:blog-8031889641831063061.post-75094735181345509132013-06-14T00:15:34.791+01:002013-06-14T00:15:34.791+01:00Yeah, kind of agree that a non-existent symptom be...Yeah, kind of agree that a non-existent symptom becomes a 'well actually I might have that', or a 'bit of that'. Example for me, dare I say it, is cog fog? Until MS reared its pretty head, forgetting words was something all my middle-aged friends do/did, none of them has MS (btw 40 is great and 50 is even better. Honestly.) Now there's a name for it, 'cog fog' so now do I have to conform to the cog fog boundaries? No. I'm not prepared to accept this particular label, since the alternative is more acceptable to me. Getting On.<br /><br />On the other hand, things I wish were imaginary aren't, such as speech hesitancy, knocking into walls (the end of elegance) and ahem, bladder stuff. <br /><br />But there are pluses in reading about issues that may or may not be relevant to me. Firstly many of my symptoms fluctuate, so I choose my words wisely on an ummmmm, ummm, umm day. Secondly, the great thing about blogs is that the REAL stuff will have been experienced by others and there are often some new tricks to learn. Such as shut the hell up, no-one cares. Ok, I made that one up, but it works for me and those around me. <br /><br />But some serious issues are thrashed out on the blogosphere, like transition from cane to chair, an impossible leap (sorry), but one made by quite a few people and hey, what do you know, they've survived/made it/adjusted. Subtext, no, in-yer-face-text, so can I. Horrific thought, but it might happen and thank goodness for the blogosphere, where essentially a 'softening up' process allows me to gradually, filter, assimilate and reflect on something(s) that at the moment seems/seem unthinkable.<br /> <br />Should end this in an upbeat way. Have a great birthday and enjoy the next 40 years!Honeysucklenoreply@blogger.com