Question: Why is being in a hospital so FRICKING exhausting?
Last week was my annual check-up with the MS team at the QMC. Emma came with me because I can have the tendency to, not exactly sugar-coat things, but maybe play things down a wee bit.
We asked him if there were any new treatments in the pipeline. He said:
Basically the pills everyone was talking about recently are, as we thought, mostly for people who have two relapses quickly on the bounce.
So you can keep those, thanks mate. *fingers crossed*
The MS Nurse
Our question for her was about the recovery from my last relapse. I know that Emma was a little bit worried about the length of my recovery and my continued weakness.
But as my relapse only (ha!) ended in May, I wondered if maybe this was normal.
"It might be"
Is this a level of clinical vagueness which is particular to MS?
I KNOW that MS is full of all kinds of wacky unknowns - that's one of the things we all love about it. But sometimes...
She had a look at the walking-stick I use (which - get this! - was a hand-me-down from my NINETY-TWO year-old GRANDMA. Which is quite something for your ego to take, i can tell you).
Well. Turns out its an inch too small.
If you stand normally with your stick at your side, it should ideally come up to the knuckly-hinge bit of your wrist.
So she went and got me one that's the correct size.
Yes it's ugly, NHS-grey and probably the SAME model as my Grandma's current one, but it bloody works.