Thursday 18 April 2019

if at first you don’t succeed...

... give up.

Not really, obviously, but it's bloody tempting.

I'm (genuinely) limping towards the end of my contract. But because you can't be too busy, I've recently applied for a couple of other jobs.

One I didn't get further than the application but the other I got to the second interview stage. It was between me and one other applicant. And - ta-daah! - they went with the other guy. To add insult to injury, it's basically the same job that I'm doing currently for a different artform. So that's a thing.

However if I'd been successful it would've meant me doing both jobs at the same time which would be pretty hardcore. Plus Mrs D is very keen that I have a little break when I finish. Especially because I had my most recent relapses within a week of finishing a previous freelance contract.

And truth be told I'm feeling pretty wrung out at present. A combination of long hours and - annoyingly - sleep being hard to come by.

Case in point: I finished writing this post during my most recent Tysabri infusion having had no more than thirty minutes sleep.

So a short break won't do me any harm.

Here's a moment of Emo Zen! 

listening to this song...
... looking out of this window in the hospital


Friday 5 April 2019

i’m on the FUMS podcast!

In a continuing showcase for my shameless oversharing and self-promotion, I thought I’d let you know that I’m the guest on the newest FUMS podcast episode.

This chat was recorded a couple of weeks ago and, as is obvious if you listen to it, it was a lot of fun.

FULL DISCLOSURE: as editor I took out a few of my more irritating space-holder noises and phrases, plus I removed a whole section of chat where I got something totally round my neck and misremembered a few facts. It seemed easier than stealing Adam Buxton’s Fact-Checking Santa character wholesale.

I’m the first guest in a series where Kathy talks to MSers from around the world to find out about their experiences of diagnosis and treatment. Obviously she’s based in the US so there are some fairly obvious differences between her experience and mine in the UK.

But I’ve heard the next episode which features Robert Joyce from A 30 Minute Life and, even though he's only from Ireland, the variation between the care we receive is pretty staggering.