Wednesday 28 April 2010

anthem for the earnest

  1. After hitting the 12 week marker, the Rebif side-effects seem to be calming down - if you remember, I called the MS nurses about my day-after-injection flu-like symptoms, flakiness and mood swings. They said it would take around 12 weeks for my body to get used to the full dosage and, lo and behold, i hit the 12 week marker recently and have noticed a real improvement - more energy in the mornings and less headaches. Sweet.

  2. However, following my initial honeymoon period, I'm now well-and-truly bored of injecting myself.

  3. I went to collect my orthotic sock - it's actually more like a medical sling / support and not very sexy (surprising I know). The nurse fitted it for me and on the little bit of walking I did afterwards, it DID seem to help (driving was a bitch, however). Since then I haven't been able to get the bugger on - diagrammatical instructions are no good for me.

  4. The result of my first blood test came back OK - after the doctors had managed to find my blood, which appeared to have been sent on a tour of the East Midlands. Anyhoo, my liver function checked out OK too. Had my second test yesterday, so it's all looking good.

  5. Can anybody recommend a job which will pay me lots of money for very little work? All recommendations gratefully received!

  6. Through over-work and extra responsibilities, coupled with the fact that we're buying a house, I seem to be having a kind-of mini-relapse. No major changes as far as my walking is concerned, but the tingling and lack of sensitivity in my hands is making typing(for example) heavy weather. Annoying. This has been going on for a week or so.

  7. Taxi Drivers continue to be the bane of my life - one yesterday was THE. MOST. BAD-TEMPERED one yet. He obviously had a problem with the shortness of the journey, so he proceeded to try to KILL ME, driving at lunatic speeds down narrow residential streets and grumbling to himself throughout. The guy I had today was a positive angel, so it was a shame that he'd obviously been farting away quite merrily on the drive to pick me up.
More updates from the house of glamour soon!

Wednesday 7 April 2010


Again, apologies for lax blogging.

Remember ages ago that I was waiting for a call back from the MS nurses? I was concerned that I was feeling lousy the day after my injections? Well, those are those unnervingly-vague "flu-like symptoms" that everyone's been telling me about.

"Nothing to worry about, just keep taking the painkillers, you'll get used to it. Incidentally, what are the results of your blood tests?"

The results of my what-now?

Apparently, I should have been getting my blood tested every month since getting on the Rebif horse to ensure I wasn't completely arsing my body up. Unsurprisingly I got checked out as soon as possible after that little revelation - I've not heard anything back from my Neuro so I'm assuming that it's all hunky-dory... for the moment.

The mood swings and all-round flakiness continue - according to the Nurses it should take 12 weeks-ish for my body to get used to the increased dosage. So, within the next two weeks I should be firing on all cylinders... as much as I ever was, anyway.

Aside from the flu-like stuff, things are going fine - I had been neglecting my physio work since being signed-off but I'm getting on with stuff more now.

And me and Emma are buying a house six-doors down from where we're currently renting - any volunteers for the human chain are gratefully received!

About a month ago, on the advice of my Physio, I went to see the Othotics department at the local hospital. Although at that point I didn't need it, they've ordered me an Orthotic sock for my pesky left leg.

I think this should help my walking when I'm having one of those days but we'll find out later when I go to collect it later on today! How exciting!