Friday, 23 September 2016

wrapped in plastic

Right at the start of my MS 'journey' (ugh) the only person we knew that had any connection with the condition was a girl Me and Mrs D both knew at the theatre where we worked. Her mum had Primary Progressive, was severely disabled and sadly eventually died. So that was our introduction to MS and our overriding image when I was diagnosed. 

As I've mentioned before, the theatre is the only past job where we still have any links with our ex-colleagues (and obviously I also met Mrs D there). So we've stayed in touch with our friend over the years. 

In February, she was diagnosed with Clinically Isolated Syndrome and an MRI showed lesions on her spine. Now CIS isn't necessarily a first sign of MS but given her family history she wasn't taking any chances. 

Which is probably why she has wholeheartedly gone for the OMS Programme. Our friend is feeling good and has been sharing photos of her food on social media for a while. Earlier this week she shared a link to the OMS website on Facebook and, coupled with the fact that I've been feeling mightily worn out recently, our interest has been piqued. 

From the website:
"Overcoming Multiple Sclerosis promotes a program of diet and lifestyle management that has been shown to improve the health and lives of people with Multiple Sclerosis. Professor George Jelinek, who was diagnosed with MS in 1999, developed the rigorously researched OMS Recovery Program more than 15 years ago."
Now I've always been very cynical about this sort of thing. It's probably been a kind of denial to say, "well, I've been dealt this shitty hand so I'm going to eat whatever I damn well please". And, y'know, we all need a bit of scientific proof and validity.

But it has always been the case that we live in a house which is predominately Vegetarian - and while I don't eat as much meat as I might do (or as much as my mum might like) neither am I as careful with my diet as I could be. 

So I'm dipping my toes into a Pesca-Vegan diet. Of all things.

The whole thing is based around diet, exercise, stress management / meditation, vitamin D and omega-3 supplementation, and medication when required - nothing too way out there, right?

I'm not going 100% straight off the bat - the oils and fats which are meant to be avoided will take a lot of research. But even cutting out meat, dairy, crisps and biscuits feels pretty hardcore at this point.

Earlier this week I had probably my last ever cheese and pickle sandwich (pictured).
Luckily it was as bland and anaemic as this picture implies. And the plastic wrapper makes it look like something out of Twin Peaks.

I feel that I've been shamed into getting a bit real-er than I have done before. But I'm looking forward to the day when I stop going "awwwww..." in a mardy voice whenever I realise that I can't eat something any more. 

The thing which has really helped is the fact that the aforementioned Mrs D is being super-supportive. She could have easily said I was on my own (she LOVES cheese and crisps more than she loves me) but she has bought me all kinds of groovy (and weird) stuff to try to help me along my way. 

So I need to break it to my brother and my friend Mike that the days of beer and burgers are at an end.  God alone knows how my mum's going to take it...

Although it is weird that a few months back when I started Tecfidera I was being told to eat as much fatty stuff as I could.

Make yr minds up, people!

4 comments:

Claire Mitchell said...

I read the same article, and trying the diet too!! :)
Like you, had little meat in my diet, but skipping eggs and cheese Will be a bitch!
Wishing you well with it,
Claire

Claire Mitchell said...

I read the same article, and trying the diet too!! :)
Like you, had little meat in my diet, but skipping eggs and cheese Will be a bitch!
Wishing you well with it,
Claire

stevedomino said...

thanks for your comment, Claire - i'm less than a week in but i think i'm feeling good - although i may be delirious from lack of sustenance...

had a great conversation with my parents and in-laws last night - "so what CAN you eat??" - i'm glad someone else is giving it a go - keep in touch (and update your blog!)

Steve

Ray said...

Hi there, just found your blog. I'm pretty local to you, on Tecfidera and been on the OMS plan since last August so loving your posts and take on stuff. I'd love that cheese and pickle sandwich right now with a bag of salt and vinegar walkers!