Wednesday, 11 January 2017

a new one just begun

The image above is from the not-really resolutions that me and the divine Mrs. D made last year. We uncovered them during our New Year's celebrations a couple of weeks ago.

If you can read my serial-killer scrawl, I think that we can agree that the second and third items on the list ("I'm going to be more... positive" and "I'm going to be less... of an arse") were not exactly met.

And on first glance, my initial reaction to the top one ("I'm going to give up... less often") was disappointment at another failed goal. But looking at it again and thinking back, I don't think this was the case.

I stuck it out at work in a demoralising and HORRIBLE situation and kept keeping on submitting the same piece of work for NINE MONTHS - taking the frustrations, knock-backs and feedback on the chin. No, it didn't work out but when the time came I left on my terms.

With support I'm sticking with the OMS lifestyle - which is genuinely not a hardship. I'm currently on a 101-day unbroken streak of meditation - I'm seeing it as my version of Pokemon Go or something; I can't lose my High Score now! And food is more interesting now (although admittedly more expensive) - this quote is something I keep coming back to, from the Overcoming Multiple Sclerosis book:
I don't understand why asking people to eat a well-balanced vegetarian diet is considered drastic, while it is medically conservative to cut people open and put them on cholesterol-lowering drugs for the rest of their lives.

More than anything, I feel mentally clearer and more with-it generally.

Which is handy, because I received a letter in the post a couple of weeks before Christmas saying that my Disability Living Allowance (DLA) was finishing and that I would have to apply for Personal Independence Payment (PIP) - you don't get moved over automatically. So for the last couple of weeks I've been filling out my application.

I don't know if you have filled out one of these forms, but it is single-handedly one of the most depressing things I've ever had to do. Speaking from the viewpoint of something as personal and infinitely variable as MS, you have to put yourself in the position of you on your very worst days - toilet problems, personal care worries, mobility issues, the full nine yards.

To say that it isn't fun in any way would be an understatement.

But at least I had a lot of "issues" over the festive break so a lot of it was fresh in my mind - #feelingblessed #luckyme.

Don't get me wrong, we had a BRILLIANT Christmas - I'd say it was in the Top Three, alongside Christmases where I got this and this.

But there were far too many times when issues to do with my mobility and my bladder just got in the way a little bit too much.

Later this week I'm getting a home visit from the nurse who'll be introducing me to the world of intermittent self-catheterisation (as my brother said, some people pay good money for this sort of thing).

And despite a bit of mild belly-aching last time, I'm genuinely hopeful that this will be a really positive thing - thanks for the supportive comments (and the email, Patrick).

3 comments:

swisslet said...

that cardboard Star Wars thing is AMAZING! Good times!
We're all friends here, by the way. We don't worry about TMI. TMI is a way of life.
Happy New Year. Here's to a totally AMAZEBALLS 2017.

stevedomino said...

did you have the Death Star too? my brother and me used to use the 'floor tiles' as if it was a game board and play against each other - hashtag-we-made-our-own-fun

as far as TMI is concerned, i can't believe how long these damn things are! more (or perhaps less) to follow!!

swisslet said...

I didn't have the Death Star, but I remember being absolutely GUTTED one year when my mum and dad refused to buy me the Ewok village... which I realise now is a horrible pile of plastic shit. But you know, at the time.. GUTTED.