Haven't seen you in a while!
Actually, I genuinely have no idea if anyone is reading this. Do people read blogs anymore, other than people old enough to remember the internet boom times? Having said that, it seems that this post - an accessibility review of Center Parcs - still seems to be the most popular, having racked up 64,000 views. Weird.
Anyway, just in case, here's an overdue update. I know how worried I can get if health content providers suddenly go quiet (I refuse to call them influencers).
I became a little conflicted about the idea of being an MS blogger. To be honest, I was always conflicted.
In order to show up consistently you need content. And with MS, that's naturally going to be health-related. Not that I ever found myself wishing for an incident. But there’s only so many ways to say, "I'm still bimbling along, my legs are increasingly weak, and my underlying symptoms are incrementally worse than they were in the past."
So what’s been going on?
I'm still working as a podcast editor. I still love it.
Going out anywhere depends on a lot of admin and negotiations. But we persevere when the event warrants the effort.
We bought a house, and we're very happy there.
The Child is now a teenager. She is obsessed with music and has adopted my two most expensive habits - buying records and guitars.
Otherwise, I'm still bimbling along, my legs are increasingly weak, and my underlying symptoms are incrementally worse than they were in the past. Obviously.
Whaddya gonna do?
As I write this, I'm having an Ocrevus infusion - my first in eleven months. No drama, this is just how long it has taken for my bloods to normalise enough so that I will get the benefit of the medication. I’m very pleased that my neurologist is risk-averse.
It has been three years since my last health incident. I know that another one is waiting in the wings. Let’s hope all my talk of "health content" doesn’t bring it out.
My brother and I are doing a podcast. It's ostensibly about the music that we wrote and recorded in our dweebily misspent youth, but we also talk about our health issues, as well as other people's music.
We also encourage listeners to get involved and share their own creativity. Give it a listen if you get the chance. There's a blog where we post related video content, and you can find it pretty much everywhere. It's inescapable.
I started doing a Substack to talk about my podcast-related thoughts but it's hard to find the time to write that, so I doubt I'll write in here again.
But never say never, obviously.
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